“Welcome to the Wolf Hirschhorn Syndrome Trust (WHST) website. The Trust is a registered charity and was formed in 1994 by a group of parents. The original Support Group was started by the late Chris Hilder, a woman who had great tenacity and vision. She had a massive heart and wanted to support everyone affected by WHS and to promote awareness and understanding of this rare genetic disorder.

This remains the ethos of the Trust today. There is a lot of information on this website which will be useful to parents, family members, friends and health professionals. Please begin by viewing the photos of our loving and happy children. They are each unique and between them touch or have touched the lives of countless people”.