to the official site of the Wolf Hirschhorn Syndrome Trust
for the UK and Ireland.
The Trust achieved charitable status in 1994 however the
original support group was founded in 1978 by the late Chris Hilder who
wanted to ensure families caring for someone with WHS could access information
- both medical and practical. The primary aims of the
Trust remain the same as Chris' and over the years the
group has grown and made important links with doctors
and other families all over the world.
national meeting is held once every two years. The group offers advice,
support and friendship to anyone with an interest in Wolf
Hirschhorn Syndrome and we hope to hear from you soon.
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