Welcome
to the official site of the Wolf Hirschhorn Syndrome Trust
for the UK and Ireland.
The Trust achieved charitable status in 1994 however the
original support group was founded in 1978 by the late Chris Hilder who
wanted to ensure families caring for someone with WHS could access information
- both medical and practical. The primary aims of the
Trust remain the same as Chris' and over the years the
group has grown and made important links with doctors
and other families all over the world.
A
national meeting is held once every two years and a newsletter
is sent to members quarterly. The group offers advice,
support and friendship to anyone with an interest in Wolf
Hirschhorn Syndrome and we hope to hear from you soon.
First time here? Our
newsletters are here read
more
The next newsletter will be out soon. Please send us anything you would like included. Remember it's your newsletter so if you have anything to share - stories, advice, pictures then please let us know.
Click on the newsletter image above to email the editor!
