Wolf Hirschhorn Syndrome - Home

Do you need to talk to someone? 0845 603 5338

 


Wolf Hirschhorn Syndrome

If this is your first time on the UK Wolf Syndrome Support Group's website then hello. We are here to help you in any way we can.

This site features information on the syndrome including that published by the UK group -from a personal perspective, and also medical information. It also aims to get families of those with Wolf Syndrome in touch with each other and sharing experiences and advice.

Wherever you are on the site clicking on the WHST logo on the top left of the page will take you back to the home page.

This site features a selection of booklets published by the UK group on feeding and emotions. These are under the brochures tab under News and Publications menu.

There is also a selection of published medical papers. These can be accessed by visiting the publications tab under the same menu.

The UK group's newsletters can also be viewed via the site.

Much of the information is stored on the site as pdf files so as to ensure no one can alter the information on them. To see them you may have to download Adobe Acrobat which you can do here.

Feel free to leave a post on our guestbook. To access it please click on this link.

If you need any further information or you would like to speak to someone then please call our national co-ordinator on 0845 603 5338.

We hope to hear from you soon,

Susan Cooper

Daughter of WHS UK founder Chris Hilder

Webmaster

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